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RESEARCH STUDY

RESEARCH

Defining the Content for a New Quality of Life Questionnaire for Students with Low Vision (The Impact of Vision Impairment on Children: IVI_C)

AUTHOR:

Cochrane, G., Lamoureux, E. and Keeffe, J.

SPONSOR/INSTITUTION:

YEAR PUBLISHED:

2008

PUBLICATION:

Ophthalmic Epidemiology Vol. 15 , Iss. 2,2008

KEY HIGHLIGHTS:

  • The purpose of this study was to describe the impact of vision impairment on participation in everyday activities of school-aged children (8–18 years).

  • This study was based on focus groups and in-depth individual interviews with students with low vision, parents and teachers in Victoria, Australia.

  • An average of 146 statements per verbatim transcript were generated with the purpose of a pediatric vision-related quality of life instrument.

  • Areas likely to facilitate good participation in everyday activities were identified, accounted for 79% of the statements were class teacher knowledge and specialist support (40%) and social interaction (39%).

  • Student views focused on communication skills and orientation and mobility whereas the specialist instructors’ emphasis was on specialist support.

  • The benefit of including the perspectives of all stakeholders in questionnaire design based on the variation of themes across groups was highlighted.

  • The multi-perspective development strategy for a new questionnaire design has demonstrated the necessity to integrate different stakeholders’ perspectives.